What are some organizations that can help a family cope with a child's disorder?

http://www.fragilex.org/html/home.shtml

http://www.fragilex.org/cfxf/

http://www.fraxa.org/default.aspx

http://www.fragile-x.ca/default2.htm

http://www.fragilex.org.uk/default.aspx

http://www.fragilex.org.au/

http://www.livingwithfragilex.com/