Monday, March 2, 2009

What is everyday life like? What is the quality of life?

  • The severity of the syndrome varies with each patient.
  • Many of the children with the disorder are home schooled so their needs can be better met.
  • A person with Fragile X Syndrome has many attention problems and can be distracted easily.
  • It is because of this that people with the disorder are cared for differently than other people.
  • As adults, people with the disorder usually go to vocational training facilities and live in a supervised setting for the rest of their lives.
  • Although a lot of people with the disorder go to vocational training facilities, many people may not have to because the severity of their symptoms may not be as severe as other patients.
  • People with less severe symptoms may be able to get a job that is best suitable for their needs.
  • Those people with less severe symptoms usually stay at home with their family.
  • The quality of life for someone with Fragile X Syndrome may be good or bad depending on the severity of their symptoms.

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